I am a public representative in the Patient and Public Involvement group for Research and Improvement, 'Side-by-Side'.
Having watched my husband loose his life to Dementia. I wanted to give something back, “do more” and get involved in research. Research in any field depends on patients and their families to improve methodology and studies.
I have taken part in a range of research studies and activities, including:
- Healthy volunteer for clinical study for systemic inflammation in Dementia with Lewy Bodies and Alzheimer’s disease
- Participant in Solent Smart pilot study
- Providing ongoing support for Solent staff member with her research study about finding ways to make questionnaires more “dementia friendly” so people living with Dementia can express their choices
- Involvement in study with Portsmouth university researcher as to whether people living with Dementia or patients with cognitive impairment deteriorate whilst in hospital
- Ongoing service evaluation as to whether coloured tableware can improve meal time experience for people living with Dementia.
Why I love being in Side-by-Side
I enjoy sharing the common purpose of being involved in making a difference and contributing ideas that are respected and listened to by all. The Side-by-Side group helps to bring a patient and public perspective to thought processes at Solent. At same time we are fortunate the Research and Improvement team give us every opportunity to embrace it.
More about me
I retired two years ago after 29 years in DWP. Throughout that time I was big supporter of staff engagement and encouraging my colleagues to participate in “fun” events. I have for last 23 years been an active volunteer for Naomi House and Jacksplace hospices. For these activities along with my new interest in research I am so proud to be awarded British Empire Medal in 2017.
Through my association with Dementia, I now review new information literature and leaflets for the Alzheimer’s society.
I have 1 son, a police officer, living on Isle of Wight with his wife and my 13 year old granddaughter. When not sharing time with them I enjoy my holidays and the therapy my garden and walking brings.